Public Expression of Positivity

For my first post I want to publicly vow to only write about positive topics. This blog will be an expression of faith, and to share all of the amazing changes that have (and will continue to) take(n) place! That said…
Seamus is much healthier than his diagnosis would suggest! Thank God!!!

Since this is my first post I thought I would start by giving some info on Seamus’ condition.

Shappy’s Diagnosis’:

1. Bilateral open lip schizencephaly (involving parietal lobes)

-“Batman-like” configuration

2. Semilobar holoprosencephaly

3. Absence of septum pellucidum

4. Digenesis of the corpus callosum

5. Normal interhemisphereic fissure anterior and posterior

6. Corpus callosum thinned

-Hyplasia of vostum

-Hyplasia of part of splenium

7. Periventricular calcifications

Migration disorders

1. Pachygyria

2. Polymicrgyria

Also noted

• Reduced white matter volume

• Normal paired thalami and basal ganglia

• Normal posterior fossa, brainstem, cerebellum

• Mildly dilated third ventricle

• Normal fourth ventricle

• No mass effect or middle shift

All in all…

He has a congenital brain malformation and cerebral palsy- that’s the jist of it. He struggles with developmental delays, hypertonicity and food allergies, but that’s all. It could be so much worse and I am so thankful that he has been the exception to the rule! All of his therapists agree that his intelligence does not appear to have been affected! Please pray for more good news.

Lastly I would like to send a shout out to Seamus’ pop pop Bill Reach(my dad) for all the help he gives us on a daily basis, and for currently filling the house with smells of pizzelles.